First, right before mothers day we had the doctors suggested that Emily needed a G-tub before coming home. This is because she was only taking about 15% of her food by mouth. We really not sure we wanted this for her, yet we wanted her to come home more. We felt like we were backed into a corner and surgery was scheduled. The Lord was looking out for us and the doctors had a bunch of emergency surgeries and Emily's was cancelled. Which turned out to be the best thing for her as right after the let her start to eat again is started to take about 85-90% of her food by mouth. With the improvement the doctors started getting Blair and I excited about coming home by the end of the week, Emily just had to pass her eye exam and for the eye doctor would release her on 100% oxygen. Just like our Emily she will do things on her time.
While the eye doctor didn't give his approval and we spend mothers day in the hospital. Yet on this day the doctor over ruled the other as she would be on such a low flow of 100% is would be ok. This meant we were back on to making plans to bring Emily home on Thursday. We were excited. We did our final teaching and Emily had a few screenings and test to pass. One of the we her car seat test. She tried three time that Sunday and freaked out so much that her heart rate jumped and failed the test. The following day the nurse waited until she was asleep and passed with flying colors. Now when ever she is in the car she falls asleep with no problem.
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| First time in the car seat- she lasted about 5-10 minutes before screaming |
We then made plans to stay the night Wednesday to learn had to care for Emily on our own. That night was the worse night ever trying to work both hospital and home machines. We made it through the night and was discharged the following afternoon with all our follow-up appointments made. Needless too say Emily has more people following her and at discharge it was hard to keep track of what doctor was what and what they were their for. We made it and all was good.
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| All strapped in ready to go home!!! |
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| In the car at last |
The weeks following were busy in trying to get into a routine. I still had to finish work the next week and my mom was nice to come and watch Emily for me to go to my preschool children's last day of school. Then the next two days, I got permission to take Emily to work with me in order to clean up and be signed out for the summer.
Emily has been doing great at home. It has been nice to have Emily home for us to be parents. The first thing we decided was to not us the feeding tube some of her therapy thinks she still needs it. We are still working on her sleeping longer at night but I an told that it will come. I am glade I don't have to work though through these late nights it is nice to sleep in and sometimes take a nap during the day.
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| Play time at home |
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| Tuckered out from her first walk in the park |
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