Monday, April 20, 2015

Emily's Fashion Week

This week started with Emily going into isolation with her fist cold virus.  She tested positive for coronavirus last Saturday, yet we have been blessed that she didn't present with any symptoms except for a little more congestion in her nose.  She actually through the week went down in her oxygen support instead of up like you would expect. 

Blair and I have also enjoyed taking clothes up that others have given up for Emily to wear.  We weren't going to take any of out stuff at first in fear they would get lost in the hospital laundry.  Then seeing how mush she is growing I figured we needing to start taking our clothes else they would not fit her anymore by the time she came home.  We have love dressing her up in the evening and them taking a picture of how cute she is.   Then to prevent then from getting lost we have a laundry bag by her bed to put the dirty clothes in for me to bring home to wash instead of them going to the hospital's laundry. So fare this have worked we hope it will continue to work for us.

Here is a glimpse of Emily's First Fashion Week...









 
What outfit do you think she looks the cutes in?

Monday, April 13, 2015

Busy Week

First I need to make a correction from last week.  I told everyone that she was 4.7lb, yet with me still learning how to convert I made a mistaken and she was really about 5.0lb.  This week I download a conversion app which makes it easier, and so she has continued to grow this week and is about  5.3lb now.

We have had a really busy week.  First, Blair's work schedule change so we have been trying to figure how that works.  It worked out well with him having a few more early days that we were able to spend a little more time at the hospital.  This was a good thing as Emily dad a crazy week.  It started more last week when we noticed that she wasn't resting or handling being held like she normally would.  Instead she was crabby almost al the time. We knew she had reflux and it just was getting worst and it was not helping her to stay up in her oxygen saturation.  Bringing my thoughts up to the NP one day they decided to look into things. 

On Sunday, they did labs and found her red blood cell count was really, really.  Which at the time they didn't know what they would do.  Monday, they decided she need her fourth blood transfusion.  With the hope to give her the energy and feel better.  Then on Tuesday they put in a different feeding tub.  The one she had before was a NG tub that ended in her stomach, this new one is a NJ tub that by passes her stomach and puts the food in to her intestines.   They did this to try and help the reflux and boy has it.  The downside of this is she was taken off the bottle for the week.  They wanted to help everything heal from the reflux and hopefully try again this coming Monday.  We have notices that we everything healing from the reflux she sleep better and in general is a happier.  She is also taking the pacifier so much easier.  We use to have to hold it to her lip for some time before she would open her month wide enough to take it, now when she wants it she opens right up.  This gives us hope that this next time around with the bottle with be easier and she will take to it so much faster.

With that we have some cute pictures:





Sunday, April 5, 2015

Easter and Growing, Growing

Sorry for the missed week.  Life has gotten really busy since I have started back at work.  We are trying to find the balance between work, hospital and home.  As we settle in our new routine with me going back to work.  It makes for some really long days, yet I go to work in the morning and I have a nice coworker that is willing to take me to the trax station that is near by after work.  I have about an hour ride to get up to Children's so I get there about 6:00 to spend the evening with Emily.  Later Blair joins me and we leave the hospital to start over the next day around 9:00.  Some times we get visitors that come. This week my parent came and Emily's Papa held her for the first time.















With Emily we have been able to learn how to do most if not all of her cares.  It is nice when we get a nurse that doesn't try and take over caring for her.  We have loved seeing her grow.  Ending this week Emily is 2 months old today.  She is weighing 4.7 pounds and 17.5 inches long. 


This week Emily also started eating out of the bottle.  She was able to try about 2-4 times a day with about 10 ml in the bottle at a time.  She did better with some attempts then others.  We did find that the more awake she was the better she seems to do, which in some cases harder for her to do as she is still really sleepy most of the time.













The biggest event this week was Emily's first Easter and to say she made it a good one. Getting a basket from us and the Hospital.  I also worked hard these last two weeks to make our families Easter outfits.  We loved dressing Emily up and everyone that saw her today thought she was the cutes thing.
Emily's Easter



Do I have to wear the dress
Family's Easter