We have had a really busy week. First, Blair's work schedule change so we have been trying to figure how that works. It worked out well with him having a few more early days that we were able to spend a little more time at the hospital. This was a good thing as Emily dad a crazy week. It started more last week when we noticed that she wasn't resting or handling being held like she normally would. Instead she was crabby almost al the time. We knew she had reflux and it just was getting worst and it was not helping her to stay up in her oxygen saturation. Bringing my thoughts up to the NP one day they decided to look into things.
On Sunday, they did labs and found her red blood cell count was really, really. Which at the time they didn't know what they would do. Monday, they decided she need her fourth blood transfusion. With the hope to give her the energy and feel better. Then on Tuesday they put in a different feeding tub. The one she had before was a NG tub that ended in her stomach, this new one is a NJ tub that by passes her stomach and puts the food in to her intestines. They did this to try and help the reflux and boy has it. The downside of this is she was taken off the bottle for the week. They wanted to help everything heal from the reflux and hopefully try again this coming Monday. We have notices that we everything healing from the reflux she sleep better and in general is a happier. She is also taking the pacifier so much easier. We use to have to hold it to her lip for some time before she would open her month wide enough to take it, now when she wants it she opens right up. This gives us hope that this next time around with the bottle with be easier and she will take to it so much faster.
With that we have some cute pictures:
She is getting down right chubby :)
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